I don't have a spinal injury, but a TBI. I can walk now, but I did have to learn how again. Had to learn how to get the message from my brain to my muscles again, after being in a coma for almost a month. I was in PT, OT, speech therapy for almost 2 years. I still have to compensate when I talk, and still need a lot of help. I have an assistant 3 days a week, and I don't work. I am on SSD and SSI, on NY TBI brain injury waiver. Anyway, there is a TBI tribe but nobody is using it.

I am coming up on my 3rd anniversary. I am having a hard time. The agency that coordinates my caregivers keeps changing my people on me with no notice, mostly to be cost effective. The last time I wrote them a letter and asked them not to, the person working with me didn't want to leave either. I am feeling very powerless. Actually I feel like I don't even have an identity anymore. I don't have a job, I don't have a voice, I don't even know who I am anymore.

Is it always like this around an anniversary? How do I get out of this funk? This isn't me. I can't stop crying, and I hate feeling like this.